DSACT is dedicated to supporting families in all facets of their loved one’s journey, including their medical experience, from diagnosis through adulthood. Our goal is to provide the most up-to-date resources on best practices through a variety of programs.
DSACT’s Medical Outreach team visits hospitals, clinics, and other medical organizations throughout Central Texas. We are also available for virtual training and presentations. Whether in-person or virtual, we aim to:
- Collaboratively develop a referral process for your new and expectant patients;
- Provide training on best practices in delivering a Down syndrome diagnosis;
- Provide training on best practices for the medical care of adults with Down syndrome
- Provide information and resources to ensure adherence to the Down Syndrome Information Act (DSIA);
- Share resources and information about our New Parent Program
To request a training, please contact us at email@example.com.
Dell Medical School Resident Program
DSACT has a partnership with the University of Texas at Austin Dell Medical School in which pediatric and OB GYN residents meet with one of our members to learn from them on their family’s medical experience. One of the most powerful things families remember is their diagnosis experience. Sharing this experience helps medical professionals understand how important and impactful the diagnosis conversation is. Discussing this and other life moments can lead to improved relationships for future families and physicians. By participating in this project, medical residents develop understanding and appreciation for the abilities of individuals with Down syndrome and the concerns they and their caregivers face.
We would love to expand this program, so we welcome participation from other resident programs or other families that would like to share their perspective. If you are interested in participating, please email firstname.lastname@example.org.
Individuals with Down syndrome who have participated in research have played a significant role in extending the lifespan and improving the health of individuals in the Down syndrome community. Thanks to those who have dedicated their time and input, we now have medical care guidelines for children and adults, answers to the connection between Down syndrome and Alzheimer’s disease, and increased funding as grantors recognize the importance of including individuals with Down syndrome in research studies. Besides including research opportunities in our newsletters, we encourage you to review the following opportunities: